Wednesday, October 1, 2014

Yesterday, we got news that we'd known was possible all along, but were hoping would never come. We met with the entire team, and they are at a point where there is nothing else they can do for Natalie. Her kidneys and lungs are not going to recover to a point where they can support her body.

From the time all of this started, every decision we've made has been with Natalie's best interest at the forefront. We would both do or give anything in order to give her the best chance at a full life. Now, we have to make decisions that will help her live out her remaining days in the most peace and comfort that is possible. Please pray for comfort for Natalie, we want this more than anything.

We draw comfort knowing that she will be in the arms of her Creator in heaven. She will finally know what it feels like to be comfortable and have a healthy, heavenly, body. She can walk, run, and play and do whatever she wants to do, without the limits she had on earth. I pray they have an endless supply of water for her to drink, and someone to pull her in her wagon.

She brought joy to our lives that we could have never imagined, and to the lives of everyone she came in contact with. It seems that everyone remembers her, even though some of the hospital staff see thousands of children. They remember her piggy tales and her constant need to be on the go.  She traveled miles in these hospital hall ways and every one would want to stop and talk to Natalie.  She is so loved., and she loved so much!

We are spending time snuggling her and loving her. Singing Itsy Bitsy Spider and If You're Happy and You Know It.  She loves those songs.

We will try to update again, right now we're pretty emotionally drained.

Thank you all for your prayers throughout these past couple years. Thank you also to those who have helped. Friends and family for being here with us, and for watching our dog and our house for us when we're gone. Everyone who has prayed, called, and texted; these words of encouragement help more than you can imagine. I would name everyone, but it would take a long time, and I'm afraid I'd forget someone. So, we'll just say thank you everyone for now.



6 comments:

  1. May God Bless and comfort your little one and all those who love her dearly.

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  2. Dear Heidi, Brad, Barbara, Paul and family.....l am very sorry to hear about the very sad moments you are going thrugh....may The Lord fill your hearts with confort knowing that little Natalie is now free of so many limitations on earth....as Heidi wrote .....and enjoying the presence of the almighthy Father. my simpathies for all of you whom l always remember as an extraordinary and lovely family .... you are my favorite american family with whom we had the Joy to share with at times when Ailyn lived there at your home....l will always appeciate so much love you gave her and us......A big hug from all of us.....love, Leonor Osorio

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  3. My thoughts and prayers are with you. Wishing you love and peace. Jennifer Bandy

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  5. I did not get to meet you Brad and briefly spoke with mom during the last stay on 8E in April. I am one of the AA's that fortunately had the opportunity to be blessed with the presence of your angel Natalie. Like clockwork she'd come around the corner in her wagon full of goodies. Most times without an emotion to notice on that little face. But the time she did smile it was one I would never forget. She even kept me company at the nurse station one time. She had a lollipop and was in her own little world (don't know when she got this lolli, but with all of those goodies in that wagon I'm sure she had all kinds of fun stuff and sweets with her).

    My heart and prayers go out to you and your family during this unimaginable time that may seem like an eternity. By having faith in The Creator, know that she is in the BEST place for anyone to be. Especially now that she is free from the stresses of this world. She will be missed by all whose life she touched. She is watching over you all and one day you will see those bright eyes and smile again.

    -KarenB

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  6. Thoughts and prayers are still with you and your family and Natalie.

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